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Last on 3 days ago
1053 points.
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Art

Tell us about your experience with/connection with CRPS

I have a good friend with CRPS. I created PhysiciansforPatients. CRPS is our main focus at this time. I hope that together we can make some head way into understanding and moving the treatment of CRPS forward

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  • Amanda

    You are a  person, doing extraordinary job making things happen for those who have crps.  And although you might not always feel it, you are loved and appreciated. ♥ thanks so much doc. this website has been such a help!!!  this is the one place where i can openly talk about how i feel and not get told its all in ur head. ur fine!!! thanks so much amanda

    12 hours ago

  • Kiki


    Kiki








    Just want to know if I should remove my video or if P4P will please give me their word they won't use it, cut and paste - especially using the song.  Should that happen I'll not only feel the RSD burn, I'll REALLY get burned for life!  Signed, Scared and don't know if I should remove my video.  Kiki Pappas

    2 days ago

  • Joanne

    Art, I posted my tx for today in my journal-Making progress----finally.    Joanne

    last week

  • Rosemary

    Thanks for the article about the IVIG treatment.  My son has a primary immune deficiency and is treated with IVIG therapy.  We know from past immune panels that I did not use to be immune deficient, but after contracting CRPS, I developed several different immune deficiencies!    Sadly, due to one of them being a complement, I am not eligible for IVIG. 


    I do wish that more CRPS patients would be evaluated for immune deficiencies--it is my sneaky suspicion that the inflammation (immune system) that creates the irritation (nervous system) triggering CRPS can be improved and/or better controlled by attacking the inflammation on a cellular level.  My immunologist has tried several different treatment methods effectively to reduce inflammation caused by CRPS!  Blessings.  ~ Rosemary   

    2 weeks ago.

  • fluffy

    hello art...just wondering if you are going to get rid of that poke? fluffy

    2 weeks ago.

  • Joanne

    Hi Art-I posted my  tx in my journal today-making orogress on the huge flair--Joanne

    2 weeks ago.

  • Rosemary

    HI Art.  Thanks, again, for all you do to make this site work.  We love it and appreciate the positive impact your special "baby" has made improving our lives through the friendships, encouragement and resources we are able to have here at the P4P CRPS site!  Thank you!!!  And blessings,

     ~ Rosemary

    2 weeks ago.

  • fluffy

    hi art...do i get extra points for sending you a hug.......lol nutty fluffy

    3 weeks ago.

  • Stacey Ann

    How can I encourage the physicians located in Pittsburgh, Pennsylvania to try low dose Ketamine infusions for patients in our area? Do you had any contact with any physicians within our area that are fimiliar with your site that treat RSD/CRPS.



    please e-mail me with a response,



    Stacey Pisciuneri-Ferrese 

    3 weeks ago.

  • Debbie

    Yes Art, Tanya is right we need a site Birthday reminder! I think the one year anniversary is near or past Take care
    DebbieXX

    4 weeks ago.