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Esto es una comunidad de gente con Sindrome de Dolor Regional Complejo. Estamos aqui a compartir nuestras experiencias. Un lugar a apoyar, escuchar, y dar adviso. Juntos, podemos aprender mas y empeorar nuestras vidas.Va al lado derecho de la pagina a iniciar. Escoge un nombre por 'username'. Escoge una contrasena por 'password'. Sigue con el buton 'Sign In'. Listo! Bienvenido a nuestra comunidad!
A chance to chat with people who understand what your going through, take a break from the "real" world, and give you the support we all need to beat this disease!I was talking to my fellow CRPS patient, Ailsa, a few nights ago and we realised that while other causes have multiple meetings both nationally and internationally for patients and doctors alike, there does not seem to be much offered for CPRS sufferers. We want this to change, so we're aiming to organise a CRPS event in 2011. A chance to meet up, talk to people who understand, and take a break from the "real" world.If anyone can help with finding a venue, helping with the planning of the event, or with sponsorship to go towards making this event a reality, please let us know. That would be fantastic, and very much appreciated!!
Dear Members, This community will be a place where I will post articles of particular interest on certain topics. I often get personal messages with questions about specific subjects, and I wanted to set up a community for us to share those questions and answers. If you have an areaof special interest on CRPS, and you want more information about it, just send me a direct message to my inbox and I will try to find a peer reviewed article from a medical journal for you to reference. All site members are welcome to post whatever additional articles and/or sources of information they feel is pertinent. Thanks! All the Best, DOC C
Do you have a verse that has helped you get through your day? Have you prayed and asked God to help and He seems to not be listening to you? What have you learned that you can share with someone? Do you have a prayer request that others can be praying with you? This is a place where you can feel safe, share your thoughts, ask for prayer and know that we will pray for each other. No judgementalness here. As a Christian, I believe in the power of prayer and that when we gather together in prayer we recieve encouragement from one another and can feel the peace that God wants each of us to have no matter what we are gong through. (I borrowed this from another p4p group. We all need a little help from God what better way to help then to pray. If you dont want prayer, maybe you can help by praying for others. We can all pray even if we cant do much else. Blessings
The Ann Arbor Area Support Group for Reflex Sympathetic Dystrophy and Complex Regional Pain Syndrome meets once a month for support group or a social event. The group is a chance to meet and connect with other people in Southeast Michigan who deal with RSD/CRPS – including family members and friends who are also impacted by the disease. I’ll be posting group events on this community if you’re interested! For more information, please email me, Jordan, at a******@gmail.com. If you're on Facebook, check out our online group - an extension of our face-to-face events. On Facebook.com, the group's name is "Ann Arbor Area RSD/CRPS Support Group". Hope to see you soon! Upcoming Events: CRPS/RSD Forum, an educational afternoon What: A free educational afternoon of speakers. Speakers will include area health professionals who specialize in treating chronic pain. Where: Dexter District Library, 3255 Alpine St., Dexter, MI 48130 When: Saturday, December 12th from 1:45 – 4:45 pm. Who: Anyone affected by RSD – this will be a great opportunity to bring your family or other people who want to know more about the disease and treatment options. Bring: A snack to share with the group is always appreciated J
Hi, Me and my wife would like to start a addreass exchange for christmas.all you have to do is I will give you ours and then if you want u give us yours and then we pass them to our other frinds and send out cards or what ever to our friends on here to let them know that they are not alone on this hokpefuly pain free holiday.thank you. George and Diana 515 Independence ave Uniontown Pa 15401
This is a community for those CRPS / RSDers in remission or cured. This is also a place for all others that have questions for those who have been fortunate enough to put CRPS in remission.If your CRPS is in remission please tell us your story. Give us any and all details. What were the surrounding circumstances? What did you do and did not do? What do you think may have contributed to your remission. Maybe if we can get enough folks to participate we can see if there are any circumstances or conditions that were in common. It may point us in the direction of places to look for new treatments.If you have any questions for CRPS remission community members please ask away. We are all here to help each other out!
A place to share positive, inspiring or happy quotes and stories, the mind is a powerful thing. Keep believing!!
An RSD community for those that live in the Great State of Texas.
Share your story of accomplishment big or small. It's the things that we do to push on that get us through our day. Your story could be learning a new way to cope, or being able to do something that CRPS previously inhibited you from doing. These stories not put hope inside ourselves but can fill each other with inspiration!
This community was established as a place for members to post good news. Anythin positive that you want to share, please feel free to do it here!
With so many members and comment walls to check, I thought it would be nice to create ONE location that could be used to provide updates on specific members. Some of us have also keep in contact with members via personal emails and/or phone calls. So if a member is not able to get on the website (in hospital, major flare & can't use hands, etc) this community can be used to let us all know how that member is doing and why they have not been on in awhile. After reading the news/update please feel free to go to that members specific comment wall and offer words of support/encouragement.
All you nurses out there! Want to start a community? We can talk about the medical aspects of RSD/CRPS. Carolyn
This is a place for anyone to ask for and to give advice on how to stay warm and keep the aches and pains under control during the colder months ahead. We all know CRPS sufferers and cold temps are not friends with each other, so lets help each other make the best of the seasons ahead.
If you are feeling down and struggling with the pain and other issues from CRPS and needing some support this community has some services listed that you can access for support. For those of you concerned about a loved one there is also information from some of the services.Many of the countries represented on this forum are here. If your country isn't included please feel free to add it or email me the information.
A Community that will have individual State locations for CRPS Patients to be added to their state(s). Please only check your state so it is accurate. Please go to Polls and register yourself in the States/Countries as they become available. There are currently no data base for CRPS.
Please forward to all family & friends: I would like to invite all of those who have family or friends who are suffering from RSD/CRPS. I think it would be helpful to have others to talk to who are going through the same thing as you and me. My sister, Jeanine Rosas, has encouraged me to join this site for some time now. I am ashamed that I have not until this point. What an amazing site. While there is no cure, bringing the awareness to others and being a support system to one another is the first step! Lets all rally and encourage eachother to stay positive and keep talking!!!!
This community will be a place for patients to chat and share thoughts about having surgery in the setting of being treated for CRPS. This topic seems to come up quite often on our site, and I think it deserves some special attention. If you have a specific experience or thought to share on this subject, please do. Many folks will benefit.Regards,DOC C
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