not really sure?/linda

hi all .not reallt sure how to make this a discussion - need some help with this one..with so many members on this great site..we are all different-yet the same?one friend is a friend of another friend so you have to go from profile to profile looking for the answer to the question you are interested in-only to find a dead end..does that drive anyone else crazy..besides me?huh where what how why..does your stress rise the way mine does?is this a real support group?who are your friends-who aren't your friends?add me -delete me..write me..boy am i confushed..private ..logged in users..just friends..no wonder new members have a hard time finding their way around..and i sure am still lost .are you?so now mine is set to private-why should i let others read mine when i can't read theirs...i still don't get it?anyone care to help me out with this ?i quit for now-going to bed-still wondering?is this really a support group?rsd brain dead in the land of oz...linda

last month
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  • Cheryl

    I couldn't of said it better. I am basically new and have no idea. I left for awhile because of this group, came back not sure why because support not really there but for one person who is really special.

    last month

  • Laura

    Linda - I'm sorry to see you go.  I know for me I've not been consistent on when I'm on or able to read or respond to posts.  It's never been a personal thing, it's just a matter of sheer volume, level of my pain, what time I get home from work, how the work day went, balancing quality evening hours with hubby, depression, etc.  I too have felt the lack of support (most of the time), felt the "clicks", been let down by what I thought were friends but basically acquaintances, etc but that seems to be on most if not all websites so I've come to that realization.  The physical pain is bad enough, so I guess the only part I do have control over (emotional pain) is I've just built a wall around my emotions so I don't hurt and feel the continous let downs. Right or Wrong it helps me.  Don't confuse that with that I don't care because I still feel for others!! Sometimes all I can muster up is sending a hug but that is to let ya know I'm thinking of you - even if I've not posted something. 

    last month

  • Melanie

    Linda darling,



    I am sorry I haven't been on here for a couple of months. Take care and always know I love you..... ok.



    Mel xo



     

    4 weeks ago.

  • carolyn

    Hi LINDA



    My name is carolyn and I've not been on here very long. But I feel the love and care from the people on this site. I'ts the FIRST SITE I can write a question about rsd and I will get an answer back.  THE people don't make fun of you because of the way you asked it or the way you spelled a word.and I DON'T KNOW ABOUT YOU BUT IT FEELS GOOD FOR SOME ONE TO TELL YOU THEY LOVE YOU ARE SENDS HUG TO YOU. I HAVE LOT'S OF DAY'S THAT SOUNDS GOOD. BECAUSE WE ARE THE ONLY ONES THAT KNOWS WHAT WE ALL ARE GOING THROUGHT.I HOPE YOU STAY . WE MIGHT NOT BE ON AT SAME TIME AS YOU ASKED A QUESTION, BUT GO BACK TO IT LATER AND PEOPLE WILL TRY AND ANSWER IT FOR YOU. JUST PLAY AROUND WITH THE BROWSE AND IT WILL TAKE YOU TO OTHER THINKS ON THE SITE AND YOU MIGHT FIND FROM THE QUESTION'S AND ANSWERS WROTE IN BEFORE WHAT YOU ARE LOOKING FOR.        I DO HOPE YOU HAVE A BLESSED DAY BECAUSE WITH RSD WE ALL NEED ONE.  CAROLYN



     



     



     

    3 weeks ago.

  • Kim #1 Fox-Robinson

    Linda~I've asked myself those questions millions of times!



    Lauara~I couldn't have said it better! So little control but that we do have, be it good or bad.



    Some days I just get so tired of thinking about and talking about being sick I feel like I'm going crazy so I just stay away and don't even open my laptop.  If we are always "hangin out" alot then you really can't get it out of your mind. I am having hallucinations again so I can play in another world as long as I stay off here and off the phone. It's amazing the things I can do "in my mind's eye and just talking to others".



    I try to live a christian life and love everyone and I pray for everyone here to have pain free days. Best wishes and gentle hugs to all....Kim

    3 weeks ago.

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