Patient
Last on 10 hours ago
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Samurai

Lisa

I love this site I can vent to myself and it helps me not to with my family 13 hours ago

Tell us about your experience with/connection with CRPS

newly diagnosed and waiting for pain mgmt doc to schedule appt

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  • gina

    Hello Lisa & welcome to P4P...I love this site too!



    I'm sorry you join us with CRPS/RSD however you have a great opportunity with early diagnosis to have successful treatment.   I urge you to read/learn as much as possible & do whatever you can to help yourself.



    I have had since 1993 & only officially diagnosed almost 2yrs ago!!..there is little to help or improve my situation, however I am being pro-active & positive as possible! 

    5 hours ago

  • Stacey Ann

    Lisa read my site, I posted your response there by mistake.



    Love ya, Stacey

    9 hours ago

  • Stacey Ann

    I have no idea about Dr. Craig  or Dr. Provenzano At Tri River Associates but I would most definetly call Dr.B back asap and talk to him about your concerns. I'll do some of my own research on these Dr.s. Can't imagine him telling you not to be concerned with the crps  (It related  to your injury) I'm very confused and concerned about his theory.  Be cautious and demand to know why he is taking this approach with the steriod injections. If I remember correctly, did you not recieve a series of these prior to changing Drs.?



    Hipporatic dictum states: "First , do no harm"



    I'll call and tell you what I find out. Would you be willing to see Dr. Edward Heres in Pittsburgh. He's honest and very conservative with his treatment, but I believe out of all the doctors I've seen, he always puts patients safety first. If you want his number Cranberry: UPMC 724-772-5284 or Shadyside UPMC Centre Commons 412-665-8030 ask for Denise or Christine. Good luck and I get back to you asap.



    Lots of love and gentle hugs: Keep the faith we are all here for help and support.



    Stacey 724-654-5270 call anytime before 7pm.

    9 hours ago

  • Rosemary

    Hi Lisa!  Still waiting to see the pain doc?  Were you able to get a referral/apt?  Hope that it is soon!  Hugs,  ~ Rosemary

    13 hours ago

  • Stacey Ann

    Hey Lisa, Hope it wasn't the dr. I referred you to.  Call me when you can.



    Lots of love and gentle hugs,



    Stacey



    Ps. Got my appointment Tomorrow in Pittsburgh: Keep me posted when you can.

    16 hours ago

  • Carrie

    Hi , Thanks for the friend request

    16 hours ago

  • hopeforall2006

    HELLO LISA,



        THANKS FOR BEING A FRIEND.IM SORRY YOU HAVE RSD/CRPS ITS A HANDFULL RIGHT.I HAVE TOTAL FULL-BODY RSD INCLUDING IN MY EYES,NASAL PASSAGE,MOUTH,HEAD AND ENTIRE BODY.ITS REALLY HARD BUT I REALLTY TRY TO STAY POSITIVE THROUGH ALL OF IT AS YOU ALREADY KNOW.



    I HOPE YOU GET YOUR TREATMENT SOON.I HAVE WAITED 10 YEARS FOR THE RIGHT DOC THAT DEALS WITH THIS AND IS HUMAN AND HIS EGO GETTING IN THE WAY.SO GOOD LUCK AND THANKS FOR BEING A FRIEND.



                      FRIENDSHIP,LOVE,FAITH,&HOPE TAKECARE!!!

    21 hours ago

  • Rosemary

    Hi Lisa, Thank you for the friendship request.  Keep up that positive attitude~it's contagious!   Blessings,  ~ Rosemary

    yesterday

  • JoJo

    Thanks for the friend request. Sorry to hear you have this dreaded disease. You will find much info here, and many friendly people. Glad you found us, and me. xxxooo JoJo

    yesterday

  • Mike

    Hi Lisa Thanks for the friend request,hope you can get a good pain doctor it is very important that they know about RSD.Sending a BIG GENTLE HUG.Mike

    4 days ago