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Doug
I posted a long message on my profile wall. Not sure if thats the right place: 6 months ago
Tell us about your experience with/connection with CRPS
“My tibia and fibula were crushed after my motorcycle fell on my leg (wasn't moving). After 3 months when the bones should have already been healed, the pain was getting worse. Problems getting military orders to put me on active duty delayed my medical care for about 7...”
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hopeforall2006HELLO DOUG,
HOW ARE YOU DOING LATELY?HOPE YOUR WELL AS CAN BE AND IM SORRY I DIDNT WRITE IN SOME TIME BUT I WAS GOING THROUGH HELL MYSELF SO I WASNT ON VERY MUCH AND NOW IM TRYING TO CATCH UP.I HOPE YOU HAVE SOME MUCH NEEDED REST AND PEICE FROM YOUR PAIN.TALK WITH YOU SOON!!!
LOVE HOPE!! XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX
2 weeks ago. -

DougSorry to hear your going through this too. Literature says it can be treated and reversed if treated early enough--within the first 3 months. You'd need a good pain management doctor who is familiar with RSD who would know what treatments are available. If allowed to progress too long, RSD/CRPS can get worse and even spread. They typically would do lumbar sympathetic blocks which work well for many, not so well for others. Mine wasn't caught until after 7 months so it progressed too far to be treatable. The swelling got so bad, it caused blood clots that traveled to my lungs and nearly killed me. When the swelling is in the leg like mine, it needs to be kept elevated to prevent swelling. I'm on coumadin blood thinners to prevent new clots and also am on oxygen due to the damage the clots caused to my lungs.
4 weeks ago.
Everyone seems to find a treatment that reduced the pain for them. What works for one person may not work for another. I control the worst pain by keeping my leg elevated when at rest. It reduces the swelling and keeps pain levels manageable. I'm not taking any pain killers since even with them, I still feel the pain. I'd rather have pain and a clear head than pain with a foggy mind. You should contact Jim Broatch (jwbroatch@rsds.org) and let him know you are in the military. He's been tracking military who have developed RSD and is also a great resource of information. Heres is the website info: http://www.rsds.org/1/membership/index.html. There is even a letter to families somewhere in his files which your husband may find useful. -

CrystalHi Sir- For the longest time I thought I was the only person with RSD. No one seemed to know what was wrong with me, or how to treat me. It started with an injury from Iraq, and just got worse since. The most difficult part of it all is to help my husband understand what I'm going thru. He also is active duty Army and he just doesn't understand how I can be in so much pain and not have any outside symptoms other than acute swelling to show for my disease. My chain of command doesn't understand so I asked them to google RSD so they wouldn't give me a hard time. My question is... has anyone ever told you whether this is permanent or treatable? I know taking the pain meds help ease the pain for a little bit, but would it ever go away?
4 weeks ago. -

SarahDear Doug, I just saw your story on the news, powerful! I have read about your many struggles, and it was nice to see you and your wife live. You are persistant and I predict you will make great changes. Thank you for all that you do,
2 months ago
Sarah -

hopeforall2006
WE STAND WITH YOU ALL! THANKYOU ALL!!! HOPE
3 months ago
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hopeforall2006DEAR DOUG,
IM SHORE YOUR SO TIRED AND ALL BUT WHEN THIS TIME OF YEAR COMES IT MAKES ME SAD FOR ALL THE MEN AND WOMEN LIKE YOURSELF SIR! I COMMEND YOU FOR ALL YOUR TIME SERVED AND YOUR SUFFERING IN PAIN IN MANY WAYS .I WILL HOLD YOU IN MY THOUGHTS AND PRAYERS AND I HOPE YOU GET SOME REST SOON.MY FAMILY AND I WOULD LIKE TO THANKYOU FOR ALL YOU AND YOUR FELLOW SERVICE MEN AND WOMEN HAVE BEEN AND HAS DONE FOR ALL OF US TO BE SAFE.WE RESPECT YOU SO MUCH FOR YOUR BRAVERY AND ALL YOUR SERVICES TILL THIS DAY EVEN THOUGH YOUR IN SO MUCH PAIN INSIDE AND OUT.
I HOPE THAT YOU AND YOUR FAMILY AND FRIENDS CAN TAKE A BREAK JUST FOR A DAY OR MORE FOR YOURSELVES YOU SO DESERVE MORE.I WISH THANKYOU WAS ENOUGH BUT I THANKYOU SIR TAKE GOOD CARE AND WE ARE WITH YOU ALWAYS.
BE SAFE AND YOU ARE OUR HERO TOO.THANKYOU DOUG!!! LOVE HOPE!!!
3 months ago -

DougThanks Hope...Been quite active lately trying to get help to our injured Reservist and Guard members. Congress seems interested in helping but only time will tell.
3 months ago -

hopeforall2006HELLO DOUG,
THIS IS HOPE AND I JUST WANTED TO DROP IN TO SAY HELLO AND THANKYOU FOR SERVING OUR COUNTRY AND WE ARE SO PROUD TO HAVE YOU HERE APART OF OUR FAMILY HERE.I HOPE YOU ENJOY YOUR HOLIDAY AND THE SAME TO ALL THE MEN AND WOMEN WHO HAVE SERVED US AND DIED FOR US TO HAVE ALL WE HAVE.HAVE A GREAT DAY SIR STRAND!!
3 months ago
THANKYOU !! LOVE HOPE -

hopeforall2006HEY DOUG,
JUST TAKING SOMETIME TO SAY HELLO AND TO SEE HOW YOU ARE DOING ? HOPE YOUR FEELING BETTER.THE WHEATHER THAT WERE HAVING IS EFFECTING ME BUT HOPEFULY IT WILL BE WARMER SOON! TAKECARE AND I HOPE TO HEAR FROM YOU!! HOPE
4 months ago

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Sabino4 months ago

Bill
Sabino
KJ